Understanding & Managing Scleroderma


What is Scleroderma?
The word scleroderma comes from two Greek words “sclero” meaning “hard” and “derma” meaning “skin”.

Information provided in this section About Scleroderma has been taken from Scleroderma Australia's Booklet Understanding & Managing Scleroderma.


This booklet is intended to help people with Scleroderma, their families and others interested in Scleroderma to better understand what Scleroderma is, what effects it may have, and what those with Scleroderma can do to help themselves and their doctors manage the disease. It answers some of the questions most frequently asked about Scleroderma.

Scleroderma Australia wishes to thank the U>S> Scleroderma Foundation for allowing us to reprint sections of their original booklet. It also wishes to express its appreciation to the many doctors, medical writers and organisations who have contributed to the publication of this booklet.

Finally, we owe a great deal of gratitude to Dr. Wendy Stevens, Rheumatologist, who transformed this booklet into a comprehensive resource for Australians living with Scleroderma. 


 Scleroderma Australia does not provide medical advice nor does it endorse any drug or treatment mentioned herein. The material contained in this booklet is presented for geneeral information only. It is not intended to provide medical advice, to answer questions specific to the conditions or problems of particular individuals. Nor is it in any way to substitute for the professional advice and care of qualified doctors.

actelion_xx.gifFunding for this booklet was provided by an unrestricted educational grant from Actelion Pharmaceuticals Pty. Ltd. 

Copies of this booklet giving the full text, together with the sunflower badge are available from The Scleroderma Association of Queensland.

The booklet and the badge are $3 each.

Both can be obtained for $5


Why the sunflower?

To raise awareness about the condition, Scleroderma Australia has adoptred a sunflower icon. The sunflower is symbolic, as like the sunflower which turns towards the sun and warmth, people with scleroderma are usually more comfortable in warmer weather.


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Please note: The new phone number for the Scleroderma Association of Queensland is 07 32773460. Our postal has changed too; it is PO Box 316, SALISBURY Qld. 4107. The new physical address of our office is 124A Evans Road Salisbury. If you would like to come and browse through some books in our library or have a chat or help, please visit on Wednesday between 9:30 and 12 midday.