|
🗓️ Date: Saturday, November 22, 2025 🕓 Time: 4:00 – 5:30 PM Eastern Time*  The countdown is on — only 8 weeks to go until What’s New in Scleroderma Research: An Online Event for Patients & Families!
🗓️ Date: Saturday, November 22, 2025 🕓 Time: 4:00 – 5:30 PM Eastern Time* 🚨Register now! ––> https://spinsclero.qualtrics.com/jfe/form/SV_blrKajuV8zmxe3s 🔗For more information & updates, visit: https://www.spinsclero.com/spinpairs Speaker Spotlight! We’re excited to announce our first featured speaker: Dr. Kimti Kumar, presenting on the effectiveness of heated gloves for Raynaud’s in people with scleroderma. 🎥 Hear directly from Dr. Kumar: https://www.youtube.com/watch?v=ThQQbAOUrEg 📄 Learn more in our Q&A with Dr. Kumar: https://www.spinsclero.com/spinpairs/drkumar More speaker announcements coming soon! This unique 2-in-1 event offers: 1️⃣ Easy-to-understand presentations on the latest scleroderma research, chosen by patients for patients. 2️⃣ A chance to contribute to a research study yourself – by giving quick ratings on how clearly presenters communicate, you’ll help improve how research is shared with patients in the future. We look forward to counting down with you and seeing you on November 22! 🌍 * Event Time in Your Region: Eastern Time: 4:00–5:30 PM | Atlantic Time: 5:00–6:30 PM | Central Time: 3:00–4:30 PM | Pacific Time: 1:00–2:30 PM | Greenwich Mean Time: 9:00–10:30 PM | Central European Time: 10:00–11:30 PM | Australian Eastern Daylight Time (November 23): 8:00–9:30 AM Warm regards, The SPIN Team
0 Comments
Welcome to the Scleroderma Queensland 2025 Seminar & AGM! Join us for a day of learning, support, and community at the QUT Kelvin Grove Campus. Our event will feature informative seminars, engaging discussions, and the opportunity to connect with others affected by scleroderma. We shall also be joined by members of the Rheumatological Association and the Lung Foundation who will be available for discussion. Don't miss this chance to expand your knowledge, share your experiences, and help shape the future of scleroderma care in Queensland. We look forward to seeing you there!  CANCELLED - Friday, Jan 10th 2025  Have you ever wanted to be part of a FLASH MOB??? Now is your chance... Come and learn the songs and moves, and join in with 3 rehearsals and ONE performance in Caloundra!! SUCH FUN!!! 4 songs (all different decades and genres) 3 rehearsals - 15, 22 & 29 October (6:30-7:30pm, Kawana Waters State College, Bokarina, KAWANA) 1 performance - 31st October - Caloundra (5:30pm)   Holland Park Sports Club Friday 11 Oct 2024 5.30 pm to 8.30 pm  Friday, Jan 10th 2025 (Doors open 8pm) Come along and see "VINTAGE VINYL" perform on Friday, Jan 10th 2025 (Doors open 8pm) at the Australian National Hotel in Woolloongabba, in order to raise much needed funding for medical research. This wonderful initiative by the band is driven by the fact that the lead singer, Annie, is one of us, and wants to use this wonderful opportunity to raise awareness and assist us in finding a cure for Scleroderma. Come along to Woolloongabba and join us for a fun and relaxed Sunday afternoon! SEE YOU THERE!!!
SCLERODERMA QLD AGM & SEMINAR - 26 OCTOBER 2024 Royal Brisbane & Womens Hospital Education Ctr Cnr Bowen Bridge Rd & Butterfield St, Herston, QLD, 4006 Lock in the Date! We are hosting our AGM and Yearly Seminar at the Royal Brisbane and Women's Hospital Education Centre and are inviting members to attend the AGM as well as non members and supporters to join us for the speakers in the afternoon. For those of us who cannot travel or are too far away to attend this event in person, we will be casting through our ZOOM platform. We will be updating you all shortly with further information and registration details.  JOIN US FOR SCLERODERMA NATIONAL SUNFLOWER DAYWednesday 6th March 2024 - Sandstone Point Hotel  Come along, wear yellow and help us get the word out about Scleroderma. Join your fellow warriors, grab a good lunch, have a great chat and laugh and just a REALLY GOOD DAY!!
Contact [email protected] for more information  Our Association's Annual Seminar and AGM are being combined this year and are being held on Date: Saturday 2nd September Venue: The VC Suites at Kedron Wavell Services Club, Kittyhawk Drive Chermside. Time: 8.30 registration You, your family and friends are welcome to come along with Financial Members entitled to vote. The current Committee will step down from their positions before allowing voting to take place for incoming Committee Members. Please use the below forms to Nominate for a position if you would like to or if you are unable to attend but would like another to vote on your behalf, please use the Proxy Form below. Payment may be made by direct deposit before the event or on the day at the venue. If you have any dietary requirements, please let us know in advance. A program of events is attached. Dr Steve Thruong, Rheumatologist, will be giving a talk on emerging concepts os the disease, treatments and care. See bio attached. 
 The 'Slow Walk for Scleroderma'
is on again! We'll be wearing our craziest '80s gear and walking for The Scleroderma Association of Queensland. When : Sunday, Oct 1st 2023 Where : Ayliffe Park on The Esplanade at Golden Beach When : at 11.30 am for a 12 noon start line Australia is at the forefront of international research in Scleroderma – studies by the Australian Scleroderma Interest group (ASIG) have led to better care and outcomes for people living with Scleroderma. But there is still so much that needs to be done. Please we need your help to raise crucial funds for this often overlooked disease. Please click on the link below to start fundraising today. |
|||||||||||
RSS Feed