Scleroderma Queensland provides support, friendship, and education for scleroderma-affected people, and their families and friends. Weadvocate and increase awareness, raise much-needed research funding, and pledge to work tirelessly toward a world free of Scleroderma and Raynaud’s. Through our journey with our rare autoimmune disease Scleroderma, we come together as a community to support each other.
We are individuals, partners, parents, children, carers and warriors. We share experiences, stories, and words of wisdom to support the Scleroderma Queensland community and the rare disease community at large.
Almost 40 years old, this not-for-profit organisation is a partner of the peak body representing rare diseases at a federal level, Rare Voices Australia.
Scleroderma Qld invites you to join us.
What is Scleroderma?
The word ‘Scleroderma’ comes from the two Greek words: ‘sclero’ meaning hard, and ‘derma’ meaning skin.