Overview
Join us online to find support, discover resources, and connect with others living with scleroderma in Queensland & the Northern Territory.

You're Invited: Online Info & Connection Session for People with Queensland and the Northern Territory
Are you newly diagnosed with scleroderma or looking to connect with others who understand the journey?
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Scleroderma Australia is hosting a free online session to share information, resources, and support for people living with scleroderma in Queensland and the Northern Territory. Whether you're newly diagnosed, have been living with scleroderma for years, or are a carer or family member, this session is for you.
You’ll have the opportunity to connect with three dedicated members of the scleroderma community who will be there to support you:

• Amanda Lawrie-Jones – Chair of the Board, Scleroderma Australia
• Tara Haneveld – Deputy Chair, Scleroderma Australia
• Janelle Blight – Support Group Coordinator, Scleroderma Victoria

Once registered, you will receive a Google Meet link to join the session.
We look forward to welcoming you and supporting your journey.

Celebrate 21 Years of Scleroderma Australia - Join us on March 21, 2026

Join us on Saturday, March 21 2026, at the Pullman Sydney Airport as we celebrate 21 years of Scleroderma Australia. This milestone event will not only be a day of reflection and, connection, but one that looks towards the future of scleroderma in Australia.

The conference will feature:
-A look back at our history and achievements
-The launch of our new awareness video
-Interactive sessions to hear what you need from us in the next 3–5 years

This momentous occasion aligns with National Sunflower Day on March 23, amplifying our commitment to raising awareness and supporting the scleroderma community.
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Don’t miss this opportunity to reflect, connect, and shape the future together.

The countdown is on — only 8 weeks to go until What’s New in Scleroderma Research: An Online Event for Patients & Families!
 🗓️ Date: Saturday, November 22, 2025
🕓 Time: 4:00 – 5:30 PM Eastern Time*
 🚨Register now! ––> https://spinsclero.qualtrics.com/jfe/form/SV_blrKajuV8zmxe3s
🔗For more information & updates, visit: https://www.spinsclero.com/spinpairs
 
Speaker Spotlight!
We’re excited to announce our first featured speaker: Dr. Kimti Kumar, presenting on the effectiveness of heated gloves for Raynaud’s in people with scleroderma.
 🎥 Hear directly from Dr. Kumar: 
https://www.youtube.com/watch?v=ThQQbAOUrEg  
📄 Learn more in our Q&A with Dr. Kumar: 
https://www.spinsclero.com/spinpairs/drkumar
More speaker announcements coming soon!
 
​This unique 2-in-1 event offers:
 1️⃣ Easy-to-understand presentations on the latest scleroderma research, chosen by patients for patients.
2️⃣ A chance to contribute to a research study yourself – by giving quick ratings on how clearly presenters communicate, you’ll help improve how research is shared with patients in the future.
 We look forward to counting down with you and seeing you on November 22!
 🌍 * Event Time in Your Region: Eastern Time: 4:00–5:30 PM | Atlantic Time: 5:00–6:30 PM | Central Time: 3:00–4:30 PM | Pacific Time: 1:00–2:30 PM | Greenwich Mean Time: 9:00–10:30 PM | Central European Time: 10:00–11:30 PM | Australian Eastern Daylight Time (November 23): 8:00–9:30 AM

​Warm regards,
The SPIN Team

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Come along, wear yellow and help us get the word out about Scleroderma. Join your fellow warriors, grab a good lunch, have a great chat and laugh and just a REALLY GOOD DAY!!

Contact info@scleroderma.org.au for more information