Scleroderma Queensland
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Upcoming Events

Living with Scleroderma: Support, Resources & Connection in QLD & NT

29/1/2026

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Online event - FREE
Feb 12 from 6:30pm to 7:30pm GMT+10
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Overview
Join us online to find support, discover resources, and connect with others living with scleroderma in Queensland & the Northern Territory.

You're Invited: Online Info & Connection Session for People with Queensland and the Northern Territory
Are you newly diagnosed with scleroderma or looking to connect with others who understand the journey?
​
Scleroderma Australia is hosting a free online session to share information, resources, and support for people living with scleroderma in Queensland and the Northern Territory. Whether you're newly diagnosed, have been living with scleroderma for years, or are a carer or family member, this session is for you.
You’ll have the opportunity to connect with three dedicated members of the scleroderma community who will be there to support you:
  • Amanda Lawrie-Jones – Chair of the Board, Scleroderma Australia
  • Tara Haneveld – Deputy Chair, Scleroderma Australia
  • Janelle Blight – Support Group Coordinator, Scleroderma Victoria
Once registered, you will receive a Google Meet link to join the session.
We look forward to welcoming you and supporting your journey.
Reserve A Spot
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Scleroderma Australia 20th Anniversary: Reflect, Connect, & Looking Forward

29/1/2026

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Saturday March 21st, 2026 - 9 AM to 5 PM AEST
Pullman Hotel Sydney Airport
191 O'Riordan St, Mascot, NSW, 2020
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Celebrate 21 Years of Scleroderma Australia - Join us on March 21, 2026

Join us on Saturday, March 21 2026, at the Pullman Sydney Airport as we celebrate 21 years of Scleroderma Australia. This milestone event will not only be a day of reflection and, connection, but one that looks towards the future of scleroderma in Australia.

The conference will feature:
-A look back at our history and achievements
-The launch of our new awareness video
-Interactive sessions to hear what you need from us in the next 3–5 years

This momentous occasion aligns with National Sunflower Day on March 23, amplifying our commitment to raising awareness and supporting the scleroderma community.
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Don’t miss this opportunity to reflect, connect, and shape the future together.
Find Tickets
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What’s New in Scleroderma Research: An Online Event for Patients & Families!

2/10/2025

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 🗓️ Date: Saturday, November 22, 2025
🕓 Time: 4:00 – 5:30 PM Eastern Time*
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The countdown is on — only 8 weeks to go until What’s New in Scleroderma Research: An Online Event for Patients & Families!
 🗓️ Date: Saturday, November 22, 2025
🕓 Time: 4:00 – 5:30 PM Eastern Time*
 🚨Register now! ––> https://spinsclero.qualtrics.com/jfe/form/SV_blrKajuV8zmxe3s
🔗For more information & updates, visit: https://www.spinsclero.com/spinpairs
 
Speaker Spotlight!
We’re excited to announce our first featured speaker: Dr. Kimti Kumar, presenting on the effectiveness of heated gloves for Raynaud’s in people with scleroderma.
 🎥 Hear directly from Dr. Kumar: 
https://www.youtube.com/watch?v=ThQQbAOUrEg  
📄 Learn more in our Q&A with Dr. Kumar: 
https://www.spinsclero.com/spinpairs/drkumar
More speaker announcements coming soon!
 
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This unique 2-in-1 event offers:
 1️⃣ Easy-to-understand presentations on the latest scleroderma research, chosen by patients for patients.
2️⃣ A chance to contribute to a research study yourself – by giving quick ratings on how clearly presenters communicate, you’ll help improve how research is shared with patients in the future.
 We look forward to counting down with you and seeing you on November 22!
 🌍 * Event Time in Your Region: Eastern Time: 4:00–5:30 PM | Atlantic Time: 5:00–6:30 PM | Central Time: 3:00–4:30 PM | Pacific Time: 1:00–2:30 PM | Greenwich Mean Time: 9:00–10:30 PM | Central European Time: 10:00–11:30 PM | Australian Eastern Daylight Time (November 23): 8:00–9:30 AM

​Warm regards,

The SPIN Team

​
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Scleroderma QLD 2025 Seminar & AGM - Friday 7th November 2025

4/9/2025

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Welcome to the Scleroderma Queensland 2025 Seminar & AGM! Join us for a day of learning, support, and community at the QUT Kelvin Grove Campus.

Our event will feature informative seminars, engaging discussions, and the opportunity to connect with others affected by scleroderma. We shall also be joined by members of the Rheumatological Association and the Lung Foundation who will be available for discussion. 

​Don't miss this chance to expand your knowledge, share your experiences, and help shape the future of scleroderma care in Queensland. We look forward to seeing you there!
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Get your tickets here
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LIVE GIG AND FUNDRAISING EVENT FOR SCLERODERMA QUEENSLAND

21/11/2024

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CANCELLED - Friday, Jan 10th 2025 
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1 Comment

HALLOWEEN FLASH MOB - OCT 31

8/10/2024

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Have you ever wanted to be part of a FLASH MOB??? Now is your chance...
Come and learn the songs and moves, and join in with 3 rehearsals and ONE performance in Caloundra!! SUCH FUN!!!

4 songs (all different decades and genres)
3 rehearsals - 15, 22 & 29 October (6:30-7:30pm, Kawana Waters State College, Bokarina, KAWANA)
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1 performance - 31st October - Caloundra (5:30pm)
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SIGN UP TODAY!
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Abbotsleigh Arts & Crafts Exhibition

28/9/2024

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​Holland Park Sports Club
Friday 11 Oct 2024
5.30 pm to 8.30 pm
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LIVE GIG AND FUNDRAISING EVENT FOR SCLERODERMA QUEENSLAND

28/9/2024

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Friday, Jan 10th 2025 (Doors open 8pm)

Come along and see "VINTAGE VINYL" perform on Friday, Jan 10th 2025 (Doors open 8pm) at the Australian National Hotel in Woolloongabba, in order to raise much needed funding for medical research.


This wonderful initiative by the band is driven by the fact that the lead singer, Annie, is one of us, and wants to use this wonderful opportunity to raise awareness and assist us in finding a cure for Scleroderma.

Come along to Woolloongabba and join us for a fun and relaxed Sunday afternoon!

SEE YOU THERE!!!
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Buy your tickets here
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REGISTER NOW - 2024 AGM/SEMINAR

31/8/2024

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SCLERODERMA QLD AGM & SEMINAR - 26 OCTOBER 2024
Royal Brisbane & Womens Hospital Education Ctr
Cnr Bowen Bridge Rd & Butterfield St, Herston, QLD, 4006

Lock in the Date!
We are hosting our AGM and Yearly Seminar at the Royal Brisbane and Women's Hospital Education Centre and are inviting members to attend the AGM as well as non members and supporters to join us for the speakers in the afternoon.
For those of us who cannot travel or are too far away to attend this event in person, we will be casting through our ZOOM platform.
We will be updating you all shortly with further information and registration details.
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REGISTRATION FORM
AGM COMMITTEE NOMINATION FORM
PARKING & TRANSPORT
GET DIRECTIONS
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PREVIOUS EVENT - MARCH 2024

8/2/2024

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JOIN US FOR SCLERODERMA NATIONAL SUNFLOWER DAY

Wednesday 6th March 2024 - Sandstone Point Hotel
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Come along, wear yellow and help us get the word out about Scleroderma. Join your fellow warriors, grab a good lunch, have a great chat and laugh and just a REALLY GOOD DAY!!

Contact [email protected] for more information
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Scleroderma ​Association of Queensland
ABN 91 905 099 795

​About Us | Members' Stories | Group Meetings | Become a Member
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Phone 0468 801 021  Email [email protected]
Postal Address 54 Avocado Lane, Maleny, QLD, 4552
©Scleroderma Association of Queensland. ​All rights reserved. Website by Grey and Grey. 
  • Home
  • About Us
    • Your Committee
    • Members' Stories
  • Become a Member
    • Printable Membership Form
    • Online Membership Form
  • Donations
  • RESEARCH
  • FUNDRAISING
  • News
  • EVENTS
  • Group Meetings
  • GET SUPPORT
  • RESOURCES
  • Contact Us
  • Newsletter
  • MERCHANDISE