The world's first double hand transplant for scleroderma, performed on Steven Gallagher in Leeds, has been a success.
Whilst this is a drastic procedure, which won't be suitable for most people with scleroderma, it does underline the importance of finding new and innovative ways to treat and care for people with the condition so they can live well.
As well as giving Steven back range of motion in his hands, the operation will allow clinicians to monitor his condition over the coming years to see whether scleroderma will affect his new hands
Therapeutic plasma exchange may help ease digestive issues in people with limited systemic scleroderma (lcSSc), new research indicates.
Ever wondered what causes some people to get autoimmune conditions? Our latest video with Dr. Price covers some theories and triggers, including the multi-hit hypothesis.
Thanks to SRUK for the video.
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The Australian health and medical research sector is at a crisis point due to over a decade of inadequate investment in the National Health and Medical Research Council (NHMRC). Please join our campaign to put health and medical research funding firmly on the political agenda by completing your details below to auto-generate an email to your Federal Electoral candidates.
It will take you less than one minute but will put our political leaders on notice that more investment in health and medical research is urgently needed to secure a healthy future for all Australians.
Patients with two rare subtypes of systemic sclerosis (SSc) — based on the presence of specific antibodies and the extent of skin involvement — have mild disease courses and specific clinical features, symptoms, and outcomes, a study shows.
People with systemic scleroderma (SSc) who have certain autoantibodies are at increased risk of developing pulmonary hypertension, or high pressure in the blood vessels of the lungs, according to a study in the U.S.
Ever wondered why your eyes feel so dry? Dr. Elizabeth Price (UK) goes over the mechanics of how eyes are lubricated, and what you can do to help them stay hydrated.
Can you imagine how it would impact life with SSc if we had a way to accurately predict whether or not Raynaud's was a warning sign for the condition?
New research suggests that using the VEDOSS criteria could do just that - allowing for earlier diagnosis and potentially even the use of stratified medicine down the line.
Join us on Saturday 25 June 2022 for our Annual Scleroderma Seminar.
An interesting perspective of being a middle child and feeling "different" until she was formally diagnosed with systemic scleroderma in 2001 at the age of 19. Read how her journey turned her siblings from feeling like "enemies" to now being her best supporters.
Scleroderma Queensland Support Group