This is an IDEAL opportunity to have YOUR say and be heard by our politicians.
The Australian health and medical research sector is at a crisis point due to over a decade of inadequate investment in the National Health and Medical Research Council (NHMRC). Please join our campaign to put health and medical research funding firmly on the political agenda by completing your details below to auto-generate an email to your Federal Electoral candidates.
It will take you less than one minute but will put our political leaders on notice that more investment in health and medical research is urgently needed to secure a healthy future for all Australians.
An interesting perspective of being a middle child and feeling "different" until she was formally diagnosed with systemic scleroderma in 2001 at the age of 19. Read how her journey turned her siblings from feeling like "enemies" to now being her best supporters.
According to best practice, people with arthritis should engage in land-based strength exercises at least twice a week.
Has your self-worth diminished over time due to Scleroderma? You're not alone.
Note: The headline of this story was updated April 19, 2022, to clarify that scleroderma isn’t becoming less rare, but rather awareness of the disease is increasing.
This month’s Scleroderma Victoria Virtual Education Session topic is “Scleroderma and Intimacy”. Unfortunately due to unforeseen circumstances, the session was postponed and will be rescheduled soon. When we have a settled date, please join us as we hear from our guest speaker – a sex and relationship therapist – about adjustments you can make if necessary to ensure you and your partner feel fulfilled.
In the meantime, check out the Virtual Education Sessions to see what is on offer.
Scleroderma symptoms can vary greatly from person to person, however, up to half of all scleroderma patients also develop lung problems.
Do you need a comprehensive explanation for friends, family or even yourself as to EXACTLY what Scleroderma is and how it impacts your life?
Sallie shares her story about her journey with Scleroderma.
Join us on Saturday 25 June 2022 for our Annual Scleroderma Seminar.
Scleroderma Queensland Support Group