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Kedron-Wavell Services Club generously donates to Scleroderma Queensland!

21/8/2022

 
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Kedron-Wavell Services Club has generously provided a community donation of $300 for the cost of room hire for our event with Associate Professor Tony Kenna in September.

Generous donations such as this from #kw allows Scleroderma Queensland to raise such important funds for much-needed research and awareness.

THANK YOU AGAIN to Kedron-Wavell Services Club. We gratefully acknowledge their support.

#KW #KedronWavell #eventsatkw
https://kedron-wavell.com.au/​

Multiple Scleroderma-linked Antibodies Possible in Patients

29/7/2022

 
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​About 2% of people with scleroderma are positive for more than one disease-associated antibody that targets tissues, causing damaging inflammation, according to a new study.
Results suggest that certain antibody combinations may be associated with distinct clinical features.

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HLA Gene Variants Linked to SSc Subtypes, Self-Reactive Antibodies

23/7/2022

 
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Variants of immune-regulating human leukocyte antigen (HLA) genes were associated with the risk of systemic scleroderma, subtypes of the condition, and the presence of self-reactive antibodies, a large-scale genetic analysis showed.
These findings underscored the genetic contribution to the disease and support future investigations into immunological susceptibility and external environmental stimuli that trigger autoimmunity in people with systemic scleroderma, the researchers noted.

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World Scleroderma Day - Qld Seminar Registration

11/6/2022

 
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Join us on Saturday 25 June 2022 for our Annual Scleroderma Seminar.
Our annual seminar is a wonderful opportunity to come together to hear from guest speakers, learn from each other and enjoy support and friendship.

Date Saturday 25 June 2022
Time 8.30am - 3.30pm
Venue Kallangur Community Hall 1480 Anzac Avenue Kallangur QLD 4503
​Cost $25 Financial Members, $30 Non-Financial Members

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SNUGGLE UP FOR SCLERODERMA

8/6/2022

 
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Will you Snuggle Up for Scleroderma Australia and help raise funds for a specialist scleroderma nurse?

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Lung Problems?

15/4/2022

 
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Scleroderma symptoms can vary greatly from person to person, however, up  to half of all scleroderma patients also develop lung problems.

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Increased Education Crucial to Improving Rare Disease Care, Survey Finds

31/3/2022

 
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Healthcare providers involved in diagnosing and treating rare diseases believe that increased physician education and collaboration with specialised facilities will have the greatest positive impact on treating these conditions over the next five years, according to results from a 2021 survey.
Definitive Healthcare, a healthcare commercial intelligence company, conducted the online survey from November to December 2021. 
Read the article here.

World Scleroderma Day - Qld Seminar Registration

23/3/2022

 
Registrations for Scleroderma Queensland seminar
Join us on Saturday 25 June 2022 for our Annual Scleroderma Seminar.

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Scleroderma Seminar June 2022

8/3/2022

 
Scleroderma Seminar
Scleroderma Queensland will host a seminar on Saturday 25th June, 2022 for members and guests. 

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World Rare Disease Day 2022

28/2/2022

 
World Rare Disease Day
On the 28th February 2022, we recognise World Rare Disease Day.

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Scleroderma ​Association of Queensland

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Phone 0468 801 021  Email info@scleroderma.org.au
Postal Address PO Box 316, Salisbury Qld 4107
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  • Home
  • About Us
    • Members' Stories
  • Become a Member
  • Donations
  • FUNDRAISING
  • News
  • EVENTS
  • Group Meetings
  • Contact Us