Study: SSc patients in Spain have 1.5 times higher overall cancer risk
Levels of the protein were higher in patients with diastolic, autonomic dysfunction.
Kedron-Wavell Services Club has generously provided a community donation of $300 for the cost of room hire for our event with Associate Professor Tony Kenna in September.
Generous donations such as this from #kw allows Scleroderma Queensland to raise such important funds for much-needed research and awareness.
THANK YOU AGAIN to Kedron-Wavell Services Club. We gratefully acknowledge their support.
#KW #KedronWavell #eventsatkw
Patient stem cells offer a promising way to test potential therapies for rare diseases
The investigational oral therapy APT-101 was well tolerated and reduced fibrosis, or scarring, in a mouse model of systemic sclerosis (SSc), according to a recent presentation from the therapy’s developer, Apie Therapeutics.
I may not be able to blow out all 44 candles in one breath, but I did get to live another wish. I’m here, and I’m celebrating another trip around the sun with nothing but gratefulness and love in my heart.
As a woman with scleroderma I’ve faced many unknowns regarding my body and health over the last 21 years. Every day is a new adventure in my own “series of unfortunate events.”
Since my diagnosis, I’ve restructured my life to make my health a priority and become hyperaware of any potential illnesses or infections. I now stay away from people who are sick, use all-natural products, and avoid touching surfaces such as door handles, railings, and elevator buttons. It may seem ridiculous to some, but this is my new normal now that my immune system is compromised.
How many times have you asked yourself, “Is this scleroderma?” Odd sensations, abnormal changes, pain, and even visible deformities — there’s no shortage of strange symptoms with this disease.
I used to embark on a fruitless journey to discover answers, spending hours researching and probing fellow patients in support groups. I never found answers that helped. I only found people experiencing the same thing, but not an explanation for why it was happening. Nothing I discovered helped to stop the pain or heal the damage.
Scleroderma Queensland Support Group