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Treatment offers new hope for lupus – and maybe for other autoimmune diseases too

29/9/2022

 
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When real patients have unprecedented positive outcomes to a new treatment, it’s tempting to talk about it as “breakthrough” for medical science. This describes the excitement around a new report from researchers in Germany of a radical new treatment for lupus.
The patients in the study – five people with severe lupus – went into remission following pioneering CAR T-cell treatment, which uses genetically altered cells.

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MT-7117 Lowers Inflammation, Fibrosis in Scleroderma Mouse Model

24/9/2022

 
The therapy's effectiveness is being tested in a Phase 2 clinical trial 
By 
Somi Igbene, PhD
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The experimental therapy MT-7117 reduces lung inflammation, skin fibrosis (scarring), and blood vessel impairment in a mouse model of systemic sclerosis (SSc), a study found.
“MT-7117 demonstrates disease-modifying effects in preclinical models of SSc,” the researchers wrote. “The results of the present study suggest that MT-7117 is a potential therapeutic agent for SSc.”

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SEE THE PRESS RELEASE FOR OUR UPCOMING SLOW WALK ON 9TH OCT 2022

22/9/2022

 
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Our Advocacy Awareness leader, Beth Leach, has released the following press release for the slow walk on 9th Oct 2022.

​Please mark this date in your diaries and join us for a light hearted day of fun, friendship and family.
press_release_scleroderma_qld_walk_for_sclero_sept_2022.pdf
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What I’ve Learned About Long-term Relationships and Chronic Illness

20/9/2022

 
Loving relationships have unique challenges when scleroderma is in the mix
by Amy Baker
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A person meets their person. If they are lucky, they fall in love. They may or may not get married. Either way, they lovingly pledge for better or for worse, in sickness and in health.
Too often, the vows we speak to one another are taken for granted. We believe things will always be good, fair, and happy in a relationship. We all have our fairytale version of how a relationship should be.

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How Survivor’s Guilt Is Yet Another Symptom of Scleroderma

19/9/2022

 
With each scleroderma death, a columnist wonders why she's a lucky one
by Lisa Weber
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Each time I read about another scleroderma warrior losing their battle, a tremendous weight crushes my soul — a combination of sadness, anger, and guilt.
I’ll always remember the fear I could hear in my mother’s voice when I first discussed my scleroderma diagnosis with her. And in my father’s emails filled with questions and research, I could feel his desperation in trying to fix his broken daughter.

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Interstitial Lung Disease Can Be Early Sign of SSc, Study Reports

15/9/2022

 
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ILD first found in 4% to 6% of scleroderma patients in US claims database

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How I Fight Raynaud’s With Medications, Gloves, and Ovens

15/9/2022

 
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Creative treatments are sometimes the way to handle the phenomenon
by Lisa Weber | September 9, 2022

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WALK FOR SCLERODERMA

9/9/2022

 
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Start your own fundraiser, join us for a slow walk, or just come along to meet others. The choice is yours.
New Farm Park Rotunda
Sunday 9th October, 2022
11.30 am for a Midday start.

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Join Our Private FB page

8/9/2022

 
Join us here...

I Can’t Control Life, but I Can Control My Mind

7/9/2022

 
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Practicing meditation helps columnist Lisa Weber reduce the stress in her life.

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Scleroderma ​Association of Queensland

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Phone 0468 801 021  Email info@scleroderma.org.au
Postal Address PO Box 316, Salisbury Qld 4107
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